X

7-Year-Old Boy Suffering from Rare Condition Runs Triathlons to Stay Alive

Jake Vella suffers from a rare hormonal condition that causes him to rapidly gain weight despite eating healthy and doing regular exercise. There is nothing anyone can do to stop the weight gain, but in order to stop the process and stay alive, the 7-year-old boy competes in triathlons.

Jake’s parents first noticed there was something wrong with him three years ago, when he gained about 20 pounds in just six months. He kept putting on weight despite eating only salad. In 2015, Jake was diagnosed with ROHHAD (Rapid-onset Obesity with Hypothalamic dysfunction, Hypoventilation and Autonomic Dysregulation), a rare condition that affects the nervous system and causes rapid weight gain, as well as an inability to regulate body temperature and maintain normal water levels. It can cause tumors to develop, and Jake already has one on his back. Unfortunately, the condition is currently incurable and the life expectancy of sufferers ranges between 5 and 9 years.

Read More »